Parents know that raising children presents challenges. But when your child has a chromosomal imbalance like 8-month old Delainie Simpson of Waynesboro, PA, every day can seem like a marathon with no finish line in sight.
It was a seemingly uneventful pregnancy. Yet within minutes of Delainie’s birth, her need for nearly constant medical care has kept her father Steve and mother Kelly guessing as to when they could stop running this dreadful race long enough to enjoy a few minutes with their little girl. Monitored-care in a neonatal intensive care unit, middle-of-the-night trips to the emergency rooms, and lengthy hospital stays have taxed the family emotionally and mentally, but also, obviously, financially.
To help the Simpson’s, Steve’s long-time friend, Matt Dayton, has gathered musicians from Maryland, Pennsylvania and North Carolina to put together the Delainie Simpson Benefit show. Festivities begin at 2 p.m. Saturday, February 11 at the Brunswick Fire Hall 223-225 West Potomac St., Brunswick, MD 21716. Admission is $15 at the door with 100 percent of the proceeds going to support little Delainie. Brunswick is approximately 60 miles west of Baltimore.
Kelly explained that while chromosomal imbalances are not uncommon in humans, how they are expressed, if at all, varies greatly from person to person. For some children, a chromosomal imbalance results in an extra 21st chromosome and is expressed as Down syndrome.
In Delainie’s case, Kelly explained that many of her symptoms are similar to those found in premature infants. Delainie, for example, had trouble breathing in her first few weeks of life and needed surgery to open up her airway. She also has profound hearing loss. When she takes a bottle, she frequently aspirates (breathes in) a little bit of formula into her lungs.
It seemed like with every passing day, Delainie exhibited a new problem presumably associated with her genetic imbalance. In time, Delainie’s entire genetic makeup was mapped, Kelly said, and physicians now know exactly where the imbalance occurred.
Furthermore, Delainie has not reached many of her developmental milestones, such as sitting up. Kelly attributes some of this delay to her daughter’s genetic glitch, but also does not discount the fact that Delainie spent many weeks confined to hospital cribs attached to monitors. She basically has not had a chance to explore her world the way other children would. Even so, Delainie now is at home full-time with her family and is improving daily. She coos sweetly and seems to be close to turning over, Kelly reports.
Meanwhile, initial response to the announcement of the benefit concert has been phenomenal, Matt explained. He reported that he had to turn bands away because so many were requesting to be on the bill. He added that this show has inspired him to become more active in the local music scene. He manages the band Trifecta, listed below, in addition to Earth Ride and Weed is Weed.
You can hear samples of many of the bands slated to play here.
If you can’t attend but want to make a donation, Paypal is accepted at the benefit’s website.
THE LINE-UP
Acts scheduled to perform fall within the heavy metal subgenre of doom with some distinct variations. The bands in likely order of appearance include:
The Civil will kick start the show with funky rhythms and guitar jams distilled from the tie-dyed purple haze emanating of the summer of love.
This Too Shall Burn boasts clear vocals, straightforward melodies, and a relentless backbeat will propel this group through their early set.
Despite Charm should impress listeners with their modern spin on traditional rock and metal.
Trifecta will transport listeners to the British blues and rock origins of metal with their Zeppelin and Cream inspired melodies.
Akris defines experimental sludge musically with the voice of angel crying overhead.
Admiral Browning paints a cerebral landscape with their more progressive, melodic approach to doom metal.Ghost of War presents soaring vocals over a backdrop of traditional guitar driven heavy metal.
Doom legends Iron Man plan to assault the audience with grinding guitar riffs and a thunderous rhythm section, framed by thoughtful lyrics.
War Injun layers aggressive vocals upon a foundation of fuzzy guitars and thrashy downbeats.
Pale Divine closes the show with music that harkens back to psychedelic the days of Iron Butterfly and early Black Sabbath.
RSVP to the event of Facebook here.